Autism History & Politics

Narrating the Many Autisms: Identity, Agency, Mattering

UK) Stenning Anna (University of Worcester

£135.00

Autism is a profoundly contested idea. The focus of this book is not what autism is or what autistic people are, but rather, it grapples with the central question: what does it take for autistic people to participate in a shared world as equals with other people? Drawing from her close reading of a range of texts and narratives, by autistic authors, filmmakers, bloggers, and academics, Anna Stenning highlights the creativity and imagination in these accounts and also considers the possibilities that emerge when the unexpected and novel aspects of experience are attended to and afforded their due space. Approaching these narrative accounts in the context of both the Anthropocene and neoliberalism, Stenning unpacks and reframes understandings about autism and identity, agency and mattering, across sections exploring autistic intelligibility, autistic sensibility, and community-oriented collaboration and care. By moving away from the non-autistic stories about autism that have, over time, dominated public conception of the autistic experience and relationships, as well as the cognitive and psychoanalytic paradigms that have reduced autism and autistic people to a homogeneous group, the book instead reveals the multiplicity of autistic subjectivities and their subsequent understandings of well-being and vulnerability. It calls on readers to listen to what autistic people have to say about the possibilities of resistance and solidarity against intersecting currents and eddies of power, which endanger all who challenge the neoliberal conception of Life. A stirring and meaningful departure from atomized accounts of neurological difference, Narrating the Many Autisms ponders big questions about its topic and finds clarity and meaning in the sense-making practices of autistic individuals and groups. It will appeal to scholarly readers across the fields of disability studies, the medical humanities, cultural studies, critical psychology, sociology, anthropology, and literature.

Autistic and Black: Our Experiences of Growth, Progress and Empowerment

Kala Allen Omeiza

£16.99

Naming Adult Autism: Culture, Science, Identity

Dr. James McGrath

£35.00

Explores representations of ‘high-functioning’ adult autism in autobiographical, scientific and fictional texts to demonstrate the value of Cultural Studies towards understanding autism as a subjective condition and social category.

Ten Rules for Ensuring Miscommunication When Working With Autistic People and People with Learning Disabilities: ...and Maybe Wh

£9.14

This powerful booklet aims to challenge our thinking about the way we communicate and interact with autistic people and those with learning (intellectual) disabilities. The '10 Rules' concept sets out to be deliberately provocative, by suggesting ways in which people, services and environments can unconciously create problems and obstacles for those they seek to support. Each communication 'rule' speaks powerfully with the voice of the individual on the receiving end of services and practice. Together, the 10 rules provide a useful starting point for discussion and a catalyst for action. Each is followed by suggestions for positive practice. The booklet also contains additional background information on good practice, together with references and sources of further information. The booklet can be used for a range of purposes, including staff induction, awareness training, individual professional development and reflection, and discussions regarding service development and design. It can be used by services, professionals and support workers, trainers, teachers, students and carers.

A Mismatch of Salience: Explorations from the Nature of Autism from Theory to Practice

Damian Milton

£27.54

For more than a decade, Damian Milton has shared his insider views on the nature of autism. This book brings together for the first time a collection of essays and articles exploring the communication and understanding difficulties that can create barriers between people, and celebrating the diversity in our communication styles and experiences. Milton re-frames the view that people with autism represent a 'disordered other', and highlights how our current knowledge has been created by non-autistic people who are 'on the outside, looking in'. He argues that communication difficulties are not due to impairment in one party, but rather to what he terms the double empathy problem A Mismatch of Salience.

Autistic Community and the Neurodiversity Movement: Stories from the Frontline

£44.99

This open access book marks the first historical overview of the autism rights branch of the neurodiversity movement, describing the activities and rationales of key leaders in their own words since it organized into a unique community in 1992. Sandwiched by editorial chapters that include critical analysis, the book contains 19 chapters by 21 authors about the forming of the autistic community and neurodiversity movement, progress in their influence on the broader autism community and field, and their possible threshold of the advocacy establishment. The actions covered are legendary in the autistic community, including manifestos such as “Don’t Mourn for Us”, mailing lists, websites or webpages, conferences, issue campaigns, academic project and journal, a book, and advisory roles. These actions have shifted the landscape toward viewing autism in social terms of human rights and identity to accept, rather than as a medical collection of deficits and symptoms to cure.

NeuroTribes: Winner of the Samuel Johnson Prize for Nonfiction

Steve Silberman

£16.99 £16.14

What is autism: a devastating developmental condition, a lifelong disability, or a naturally occurring form of cognitive difference akin to certain forms of genius? In truth, it is all of these things and more - and the future of our society depends on our understanding it. Following on from his groundbreaking article 'The Geek Syndrome', Wired reporter Steve Silberman unearths the secret history of autism, long suppressed by the same clinicians who became famous for discovering it, and finds surprising answers to the crucial question of why the number of diagnoses has soared in recent years. Going back to the earliest autism research and chronicling the brave and lonely journey of autistic people and their families through the decades, Silberman provides long-sought solutions to the autism puzzle while casting light on the growing movement of 'neurodiversity' and mapping out a path towards a more humane world for people with learning differences.

Autistic Masking: Understanding identity management and the role of stigma

Amy Pearson and Kieran Rose

£34.44

Masking is a form of identity management involving consciously or unconsciously suppressing aspects of identity and action. Often seen in socially marginalised groups, it is found to contribute towards poorer outcomes for autistic people, and is related to higher prevalence of suicidality, exhaustion and burnout, and mental health difficulties. Autistic Masking offers a holistic understanding of the most up-to-date evidence in this field, with the aim of developing solid knowledge and practice in health, education and society. Written to be accessible to everyday readers with an interest in autism as well as academics and professionals, the book deconstructs the predominant misconception that masking is purely a social strategy to ‘blend in’ with neurotypical (non-autistic) people. The authors consider the social context that facilitates impression management, including an individual’s response to stigma or trauma, and take an intersectional approach to exploring how autistic identity may interact with other aspects of selfhood.

Neurodiversity Studies: A New Critical Paradigm

£39.99

Building on work in feminist studies, queer studies and critical race theory, this volume challenges the universality of propositions about human nature, by questioning the boundaries between predominant neurotypes and ‘others’, including dyslexics, autistics and ADHDers. This is the first work of its kind to bring cutting-edge research across disciplines to the concept of neurodiversity. It offers in-depth explorations of the themes of cure/prevention/eugenics; neurodivergent wellbeing; cross-neurotype communication; neurodiversity at work; and challenging brain-bound cognition. It analyses the role of neuro-normativity in theorising agency, and a proposal for a new alliance between the Hearing Voices Movement and neurodiversity. In doing so, we contribute to a cultural imperative to redefine what it means to be human. To this end, we propose a new field of enquiry that finds ways to support the inclusion of neurodivergent perspectives in knowledge production, and which questions the theoretical and mythological assumptions that produce the idea of the neurotypical. Working at the crossroads between sociology, critical psychology, medical humanities, critical disability studies, and critical autism studies, and sharing theoretical ground with critical race studies and critical queer studies, the proposed new field – neurodiversity studies – will be of interest to people working in all these areas. Chapter 7 of this book is freely available as a downloadable Open Access PDF at http://www.taylorfrancis.com under a Creative Commons Attribution-Non Commercial-No Derivatives (CC-BY-NC-ND) 4.0 license.

The Routledge International Handbook of Critical Autism Studies

£200.00

This handbook provides an authoritative and up-to-date overview of Critical Autism Studies and explores the different kinds of knowledges and their articulations, similarities, and differences across cultural contexts and key tensions within this subdiscipline. Critical Autism Studies is a developing area occupying an exciting space of development within learning and teaching in higher education. It has a strong trajectory within the autistic academic and advocate community in resistance and response to the persistence of autism retaining an identity as a genetic disorder of the brain. Divided into four parts • Conceptualising autism • Autistic identity • Community and culture • Practice and comprising 24 newly commissioned chapters written by academics and activists, it explores areas of education, Critical Race Theory, domestic violence and abuse, sexuality, biopolitics, health, and social care practices. It will be of interest to all scholars and students of disability studies, sociology, anthropology, cultural studies, education, health, social care, and political science.

Autistic Intelligence: Interaction, Individuality, and the Challenges of Diagnosis

Douglas W. Maynard and Jason Turowetz

£24.00

An examination of diagnostic processes that questions how we can better understand autism as a category and the unique forms of intelligence it glosses. As autism has grown in prevalence, so too have our attempts to make sense of it. From placing unfounded blame on vaccines to seeking a genetic cause, Americans have struggled to understand what autism is and where it comes from. Amidst these efforts, however, a key aspect of autism has been largely overlooked: the diagnostic process itself. That process is the central focus of Autistic Intelligence. The authors ask us to question the norms by which we measure autistic behavior, to probe how that behavior can be considered sensible rather than disordered, and to explore how we can better appreciate the individuality of those who receive the diagnosis. Drawing on hundreds of hours of video recordings and ethnographic observations at a clinic where professionals evaluated children for autism, the authors’ analysis of interactions among clinicians, parents, and children demystifies the categories, tools, and practices involved in the diagnostic process. Autistic Intelligence shows that autism is not a stable category; it is the outcome of complex interactional processes involving professionals, children, families, and facets of the social and clinical environments they inhabit. The authors suggest that diagnosis, in addition to carefully classifying children, also can highlight or include unique and particular contributions those with autism potentially can make to the world around us.

War on Autism: On the Cultural Logic of Normative Violence

Anne McGuire

£39.04

Autism is widely understood in contemporary times as nothing more than a biomedical disorder in need of treatment and/or cure. War on Autism disrupts this singularity by examining autism as a historically specific and power-laden cultural phenomenon that has much to teach about the social organization of a neoliberal western modernity. Bringing together a variety of interpretive theoretical perspectives including critical disability studies, queer and critical race theory, and cultural studies, the book analyzes the social significance and productive effects of contemporary discourses of autism as these are produced and circulated in the field of autism advocacy. Anne McGuire discusses how in the field of autism advocacy, autism often appears as an abbreviation, its multiple meanings distilled to various “red flag” warnings in awareness campaigns, bulleted biomedical ”facts” in information pamphlets, or worrisome statistics in policy reports. She analyzes the relationships between these fragmentary enactments of autism and traces their continuities to reveal an underlying, powerful, and ubiquitous logic of violence that casts autism as a pathological threat that advocacy must work to eliminate. Such logic, McGuire contends, functions to delimit the role of the “good” autism advocate to one who is positioned “against” autism.

The Adult Autism Assessment Handbook: A Neurodiversity Affirmative Approach

Dr Maeve Kavanagh, Davida Hartman, et al.

£32.99

Adult autism assessment is a new and fast-growing clinical area, for which professionals often feel ill-equipped. Autistic adults are often misdiagnosed which has enormous implications for their mental health. This accessible and comprehensive adult autism assessment handbook covers the most up to date research and best practice around adult autism assessment, centering the person's internal experiences and sense-making in clinical assessment, rather than subjective observation, thus providing the clinician with a truly paradigm shifting Neuro-Affirmative approach to autism assessment. Traditional clinical assessment tools are comprehensively explored and unpacked to enable the clinician to have full confidence in aligning traditional criteria to the Autistic person's subjective experiences. Full of additional resources like language guidelines and an exploration of the common intersections between Autistic experience and the effects of trauma, mental health and more, this book supplies a breadth of knowledge on key areas that affect Autistic adults in everyday life. The mixed team of neurotypical and neurodivergent authors describe lived experience of Autistic adults, a how-to for conducting Neuro-Affirmative assessments and post-assessment support, alongside reflections from practice. This book also has a directory of further resources including downloadable forms that you can use to prepare for your own assessments and a downloadable deep dive into Autistic perception. This guide will also support professionals through every step of the assessment process.

The Autism Industrial Complex: How Branding, Marketing, and Capital Investment Turned Autism into Big Business

Alicia A. Broderick

£37.89

Within capitalism, the Autism Industrial Complex (AIC) produces both autism as commodity and the methods of intervention to deal with it. Comprised of ideological, rhetorical, material, and economic infrastructures, the AIC is not only a variety of businesses and industries that capitalize and profit from it. In the production of autism as commodity, the AIC also produces that commodity's market, its consumers, and its monopoly control of that market through production for consumption of need for, consent to, and legitimacy of interventionist logics. Given this, almost anyone can capitalize on and profit from autism. And within the AIC, autistic people--their very bodies--function as the raw materials from which this industrial complex is built, even as their very identities and selves become unwitting, and often unwilling, products of the AIC. Autism, Inc. is essential reading for a variety of audiences, from healthcare providers to educators to parents. Perfect for courses such as: Introduction to Critical Autism Studies; Disability Studies--Theory, Policy, Practice; Disability & Rhetoric; Disability & Cultural Studies; Doctoral Seminar in Disability Studies; Cultural Foundations of Disability in Education.

I Will Die On This Hill: Autistic Adults, Autism Parents, and the Children Who Deserve a Better World

Jules Edwards, Meghan Ashburn, et al.

£16.99

There is a significant divide between autistic advocates and parents of autistic children. Parents may feel attacked for their lack of understanding, and autistic adults who offer insight and guidance are also met with hostility and rejection. Meghan Ashburn, a mother of two autistic boys, and Jules Edwards, an autistic parent, were no strangers to this tension and had an adversarial relationship when they first met. Over time, the two resolved their differences and are now co-conspirators in the pursuit of disability justice. This book unites both perspectives, exploring the rift between these communities and encouraging them to work towards a common goal. It provides context to dividing issues, and the authors use their experience to illustrate where they've messed up, where they've got things right, and what they've learned along the way.

Love, Learning Disabilities and Pockets of Brilliance: How Practitioners Can Make a Difference to the Lives of Children, Familie

Sara Ryan

£20.99

This is a book written to celebrate the humanity of people, and to share experiences of what brilliant care and support can look like for families with learning disabled or autistic children and adults. Sara Ryan steers clear of jargon and 'doublespeak' to conjure authentic experiences of families. Speaking with families and professionals, she conveys the love, laughter and joy which binds families and the harsh realities many face; of separation from loved ones, substandard care and frustration and helplessness in the face of inflexible services. From their experiences, Sara looks to capture those pockets of brilliance that families have encountered, and which outstanding practitioners have pioneered, for us all to learn from. We know so much about what support and services should look like in order to enable flourishing lives - this book aims to help families and professionals to achieve it, together.

Understanding and Evaluating Autism Theory

Nick Chown

£29.99

Addressing the full spectrum of theoretical output associated with autism and Asperger syndrome, this is the complete guide to autism theory - spanning from mainstream and alternative, through to non-autism specific theories that might be applied to autism. Previous study on autism has made significant inroads into the individual branches of autism theory, however, no text has brought together the complete range of theories in an accessible textbook for students and academics. The author argues that a more obvious application of theory to autism intervention would be beneficial to practitioners. With access to the complete range of available autism and Asperger syndrome theory, from development theories to learning style theories, the academics and students working towards the practical application of theory to intervention will have all the necessary information at their disposal. The book is based on a series of autism theory lectures delivered for the NAS and Sheffield Hallam University.

The Doctor Who Fooled the World: Andrew Wakefield’s war on vaccines

Brian Deer

£16.99 £16.14

The news breaks first as a tale of fear and pity. Doctors at a London hospital claim a link between autism and a vaccine given to millions of children: MMR. Young parents are terrified. Immunisation rates slump. And as a worldwide ‘anti-vax’ movement kicks off, old diseases return to sicken and kill. But a veteran reporter isn’t so sure, and sets out on an epic investigation. Battling establishment cover-ups, smear campaigns, and gagging lawsuits, he exposes rigged research and secret schemes, the heartbreaking plight of families struggling with disability, and the scientific deception of our time. Here’s the story of Andrew Wakefield: a man in search of greatness, who stakes his soul on big ideas that, if right, might transform lives. But when the facts don’t fit, he can’t face failure. He’ll do whatever it takes to succeed.

Autism, Pedagogy and Education: Critical Issues for Value-based Teaching

Carmel Conn

£54.99

This book discusses critical issues concerning autism and education, and what constitutes effective pedagogy for this group of learners. Autism is a high-profile area within the discipline of special education, and the issue of how to teach autistic learners remains a contested one: recent theorising has questioned a techno-rationalist approach that places the burden of change on the autistic pupil. The author explores the values that underpin educational approaches within existing pedagogical practice: while these approaches have their individual merits and shortcomings, this book introduces and expands upon a strengths-based approach. This book will appeal to students and scholars of autism and education, with particular regard to teaching autistic learners.

Autism and Gender: From Refrigerator Mothers to Computer Geeks

Jordynn Jack

£24.99

The reasons behind the increase in autism diagnoses have become hotly contested in the media as well as within the medical, scholarly, and autistic communities. Jordynn Jack suggests the proliferating number of discussions point to autism as a rhetorical phenomenon that engenders attempts to persuade through arguments, appeals to emotions, and representational strategies. In Autism and Gender: From Refrigerator Mothers to Computer Geeks, Jack focuses on the ways gender influences popular discussion and understanding of autism's causes and effects. She identifies gendered theories like the “refrigerator mother” theory, for example, which blames emotionally distant mothers for autism, and the “extreme male brain” theory, which links autism to the modes of systematic thinking found in male computer geeks. Jack's analysis reveals how people employ such highly gendered theories to craft rhetorical narratives around stock characters--fix-it dads, heroic mother warriors rescuing children from autism--that advocate for ends beyond the story itself while also allowing the storyteller to gain authority, understand the disorder, and take part in debates. Autism and Gender reveals the ways we build narratives around controversial topics while offering new insights into the ways rhetorical inquiry can and does contribute to conversations about gender and disability.

Letters To My Weird Sisters: On Autism and Feminism

Joanne Limburg

£10.99 £10.44

It seemed to me that many of the moments when my autism had caused problems, or at least marked me out as different, were those moments when I had come up against some unspoken law about how a girl or a woman should be, and failed to meet it. An autism diagnosis in midlife enabled Joanne Limburg to finally make sense of why her emotional expression, social discomfort and presentation had always marked her as an outsider. Eager to discover other women who had been misunderstood in their time, she writes a series of wide-ranging letters to four 'weird sisters' from history, addressing topics including autistic parenting, social isolation, feminism, the movement for disability rights and the appalling punishments that have been meted out over centuries to those deemed to fall short of the norm. This heartfelt, deeply compassionate and wholly original work humanises women who have so often been dismissed for their differences, and will be celebrated by 'weird sisters' everywhere.

Autism, Ethnicity and Culture: Working with Children and Families from Minority Communities

Prithvi Perepa

£24.99

Autism affects all ethnicities, yet professionals do not always have the skills required to support the diverse needs of autistic young people and their families from different communities. As a result, families from these communities often experience issues in getting a diagnosis, access to educational and social care settings, appropriateness of social skills being taught to children, and misinterpretation of behaviour exhibited by these children, which can also lead to higher rates of exclusions. This innovative book provides professionals with knowledge about the issues faced and equips them with practical strategies to resolve them. Drawing on his extensive experience and research, Perepa combines a comprehensive overview of autism and minority ethnic communities with guidance on how best to support children and young people from these communities. An essential resource for professionals working in our increasingly multicultural society.